Monday, November 23, 2009

Possible cure for MS could be one trial away - ABC - Salt Lake City, Utah News

Possible cure for MS could be one trial away - ABC - Salt Lake City, Utah News

Posted using ShareThis

This sounds like potentially exciting news for everyone with autoimmune disorders, so I thought I would put up a link. Doctors at Johns Hopkins have found a way to "reset" the immune system and keep it from attacking the body. The problem is that they are struggling to find funding for the the last stage of trials. The patents on the drugs used have expired, so big pharma will have no part in funding this treatment which has so far CURED 90% of MS sufferers who have tried it.

In the ultimate David and Goliath narrative, a woman from Salt Lake has decided to raise the millions needed herself to help more people get this experimental treatment, and complete the trials in hopes of getting FDA approval. I decided to help, and recently asked her if I could make a pendant in her honor. She chose a phoenix for her design since a cure for MS would mean nothing short of rebirth.

Learn more about Michelle at
You can donate there, or visit my Etsy Shop to pick up your own Phoenix pendant!

Friday, November 20, 2009

20 Years

It's here, friends. The 20th anniversary of the accident that got me into this entire mess is today. I have been rounding up for a while now... "20 years of pain," I would say to myself, but I knew it wasn't completely true. As if 19 years was really that much better.

As of yesterday, I'm back at work on the dumb book, I mean the wonderful book about the last 20 years of my life. I have been ignoring the book for quite some time, but going through those all-too familiar words yesterday reminded me of an amazing revelation that came from the writing process. So even if I don't sell the book, at least I have some peace, right? I realized that being in this much pain since I was 10 years old hardened my spirit just enough to face all the crap with my mom that was in store. When doctors accused me of lying about the pain, I had to develop an inordinate amount of self respect and self love so that I could continue to defend myself. When my mother lost her mind to mental illness and tried to take me with her, I was able to save myself. (The infamous) THEY say that most people never make it out of family situations like mine. And just look how functional I am!! So at least I have that going for me... which is nice.

But if given a choice, I would choose no pain at all. (duh!) This is why I have to offer props to science! Another RSD Blogger recently posted some exciting news that was published in Scientific American about Glia cells being responsible for chronic pain. The frustrating part, is that I have been asking for one of the medications that is supposed to suppress the Glial response for over a year now, with no luck. Anyway, this is the article if you're interested.

So that's where I'm at today. I'm tired. I'm tired of pain, and having it be a factor in every choice I make from walking the dog to having children. I'm sad about all of it, but pain has been such an integral part of my being for so long, I know that my life would be completely different today if I had never stepped in front of that car. It's a question for the ages I guess. Without the pain would I still be here with my amazing family, or would I be stuck in my mother's insane alternate reality. That's a way-homer...